On Friday, March 26th, everything was pretty much okay in my little world. I was going home for a full week of break, I had cleared everything off my work to-do list so that I could focus on finishing on-line courses and cleaning out the backyard, and every last one of my students was set to pass the year, based on their grades through the third marking period. It was sunny and warm, and I was really happy. Best of all, it seemed like Scott was on the mend after a trip to the ER that took up all night from March 21 to the 22nd.
I spent the evening delivering Kai to another jazz band competition and then running around doing some shopping for Easter. I had just gotten home from her jazz festival when Scott took a turn for the worse. He was again in horrible pain. So we headed back over the the ER. After another 10 hour stay, Scott was admitted with the diagnosis of a bile leak. The next three days were pretty miserable. He had to have a drain inserted to remove the bile. He had to have a stent inserted with an ERCP (his most hated procedure) to stop the leak. I won't go into all of the details, but we were very relieved to be leaving the hospital for good when we headed home on the 29th of March.
Meanwhile, Grandma had come down from New York to take care of the kids, which was amazing and wonderful of her. So on the 30th and the 1st, she and I sewed a quilt for my drama club to raffle. We shopped for Nicky's birthday. Scott rested. Kairi and Grandma worked on a special gift for her band teacher. Grandma decided to stay until Nicky's birthday party on Saturday to give me an extra hand, since Scott was still pretty weak.
Also, since we weren't having quite enough medical fun, on the night of the 30th, I ended up in urgent care with the worst case of poison ivy ever. The doctor put my on a steroid taper to clear up the problem, but MAN did I itch!!
But then, on the night of the 1st, all heck broke loose again. Scott was rehospitalized - this time with a 103.5 fever. The diagnosis this time? The stent they had placed had slipped. So they pumped him up with antibiotics, yanked the stent back in place through endoscopy, and sent him home again just hours before Nick's birthday party on April 3rd. Unfortunately, during the stay they didn't follow their own directions to take care of the drain that was still in his side to remove bile. This becomes important later.
Getting back to my spring break (of which I've now spent 6 days sitting next to Scott's bed in the hospital), I now had mere moments before Nicky's birthday party. Fortunately, Scott had said it was okay for me to leave the hospital early the night before so I had run home and made all the favors and cupcake toppers. Nick's party was at the Rave. He had about 10 friends with him to see the movie "Diary of a Wimpy Kid". The party room at the Rave is really cool, but we added some balloons and a movie poster for fun. We added pizzas for $3 a kid, and when one guest saw that everyone was getting an individual pizza, he said "This is like paradise!" which I thought was funny.
His cupcakes were red velvet cupcakes from Fresh Market and they were HUGE. They put them in boxes at first, but when I called in a panic because they were supposed to be on a tray and the ones in the boxes had fallen and gotten smooshed they replaced them quickly and gave Nick balloons to boot. Their customer service rocks, and the cupcakes were tasty, too!
The Rave scheduled the movie really poorly after telling me the party would start at 12:00 and I had almost two hours to fill before the movie started. We ended up spending a LOT on tokens for the arcade. Finally, I got them to play an air hockey tournament which made the tokens last much longer. Nick won his first game, but got beaten in the semi-finals.
The movie itself was okay. I didn't really like the main character - he was actually kind of a jerk. And most of the funny bits were in the trailer. Still, the guys enjoyed it, and Nicky thought his party was a success. Scott wasn't there for most of the party, but he came over to sit through the movie with us, and that made Nick happy, too. Not to mention the presents and the $$ he got in gift cards and cash!
My spring break was fast disappearing at this point. I had to go home and get ready for Easter and Nick's real birthday. He wanted a butterscotch pumpkin cake, so that had to be baked the night before. Plus, we still had to clean, color eggs, and get groceries.
It was pretty late by the time we finished getting ready, but Scott still put in an appearance for a few minutes of egg coloring. I think my kids are lucky to have a dad that makes sure he participates in traditions, even when he's really ill.
The eggs duly colored, we sent everyone off to bed by 11PM. Not too bad.
Easter and Nick's birthday dawned bright and sunny. We started with the birthday presents...
And then moved on to Easter baskets.
Then Nick put it together for a little Easter shooting gallery of chicks and bunnies with his new birthday Nerf bow. Eh. Whatever works!
Next it was time for Grandma to head home (with many thanks for all her help all week) and for us to head to church and meet up with the cousins. Hannah had arrived in time for Nick's birthday party the day before, but we were glad to see her again. The kids looked beautiful, as always!
We also hadn't seen Juli since HER birthday with all the hustle and bustle, so we she got birthday presents on Easter, too.
Finally, it was time to head home. Scott was looking pretty wiped out by this point, and we all needed a quiet afternoon, followed by a tasty birthday dinner.
And yes, PUMPKIN cake on Easter. Whatcha gonna do? That night, I took Nick out to learn to ride his bike. He had never managed to take the training wheels off his old one. I will say it took some tears and frustration, but he powered through and managed to ride the length of the Dimmick park parking lot without putting his feet down once. Go Nick! (And yes, I felt like a JERK making him cry on his birthday, but I couldn't let him give up on himself, either.)
Easter Monday was another gorgeous spring day. Scott tried to go back to work, but his boss wouldn't let him without clearance from the doctor. Since he couldn't get a follow up appointment until Tuesday, he got to sit in the sun and watch Nick ride his bike.Then, moments after I took this picture, Nick wiped out big time. Scraped up everything, gravel in his hands. Looked like he was going to need a few days off from bike riding.
So we met the cousins at the playground.
It was definitely the perfect spring day for the park.
And Hannah and Nick had fun with Nick's new pitching machine.
Scott was limited to slow walking and tossing the occasional pink kickball, but it was nice to see him looking so happy.
That night, my medication completely kept me from sleeping, which turned out to be a problem on Tuesday night. Cause no sooner did Scott's doctor clear him for work on Tuesday morning than he spiked another fever on Tuesday night. Another overnight in the ER. Another admission to the hospital. Five long days this time. We ended up having multiple issues with doctors who didn't seem to know the score. I may have made a few scenes. (Look, my perfectly healthy 33 year old husband went for a routine procedure and then spent 12 additional days in the hospital. Wouldn't you have made a few scenes???) I missed all manner of work. Grandma had to come all the way back down and save our butts again. The kids went pretty much all week without seeing mom and dad. Many tears were shed. End result? He's still leaking bile. The stent won't fix it, because the bile he is leaking is from an extra duct most people don't have. They KNEW he had it, but still managed to leave it leaking bile after the surgery. The doctors insist this is all a terrible series of coincidences and no fault of theirs. Scott, my honorable, forgiving husband is willing to let them get away with that. So whatever. But they sent him home NOT FIXED. They KNOW he's not fixed. And they are merely hoping that it will heal itself over the next three weeks. But if not, he may be in for more procedures, more tests, and even more surgery. So we are praying. Cause that's all we can do.
When Scott came home on Saturday, we made blankets for pediatric patients through Project Linus. It felt like a positive thing to do for a couple of reasons. One, it was something we could do to help others going through tough times. Two, since we signed up for the project through Disney, we'll get fastpasses for rides on our upcoming vacation by sending the blankets in. And planning that vacation, even in the face of all that's still going on, feels hopeful.
The blankets came out really cute, and we had fun making them. Plus, having Grandma there meant we got them right, which is always a bonus.
Today was an ordinary day. We went to church. The kids played on the playground. We took a Sunday nap. We went grocery shopping. I'm praying that we can keep having ordinary days from now on.









